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Youth Group Members

Andreas is 28 years old and comes from Cyprus. When he was 17 he was diagnosed with IPT (inflammatory pseudotumor) disease. He is member of two organisations: the ‘Pancyprian Federation of Patients' Associations’ and ‘Friends & PASYKAF’. As the President of the Youth Group, he provides leadership, direction and guidance, as well as coordinating operations and activities. He is also the main spokesperson of the group.

Learn more about Andreas!

Yolita Pavlova is Vice President of the Youth Group, and has been a member of the EPF Youth Group since 2012. She is also a young representative of the Confederation of Health Protection (KZZ) in Bulgaria and took part in the EMPATHY project in Brussels in 2013

Learn more about Yolita!

Borislava is from Bulgaria, and she is 23 years old. She was kidney transplanted at the age of 15 and is part of the Youth Group since its creation. She is involved in the Bulgarian National Patient Organisation and in the Bulgarian Union of transplanted people.

Learn more about Borislava!

 

Jana is 27 years old and she is from Bulgaria. When she was 10 months old, she was diagnosed with SMA (Spinal Muscular Atrophy), Neuromuscular disorder. She is Executive Committee member of the European Alliance of Neuromuscular Disorders Associations (EAMDA) and member of the Bulgarian Association for Neuromuscular Diseases. She is also PhD student at the University of Sofia and works as a freelance journalist. 

Learn more about Jana!

Lembe is a 21-year-old girl from Estonia. She was diagnosed with Juvenile Idiopathic Arthritis when she was 7. She is member of the Estonian Chamber of Disable People and is the person in charge of Social Media for the Youth Group.

Learn more about Lembe!

Louise is 20 years old and comes from Belgium. She was diagnosed with Type 1 Diabetes since a very early age. Louise joined the Youth Group in 2018 as representative of IDF Europe. She pledges to fight against stigma and discrimination with every power she has.

Learn more about Louise!

 

Magdalena is 21 years old and comes from Sweden. She was diagnosed with CVID when she was 15 and has since then been involved in the Swedish organisation PIO. She also quite recently got more involved in the international organisation IPOPI as well and she joined the EPF youth group in 2018.

Learn more about Magdalena

Marlou is 26 years old and comes from the Netherlands. She has a rare disease called ‘Fabry’ and cooperates with the organisations EGAN (on genetics) and FSIGH (on Fabry).
She is one of the founding members of the Youth Group, and takes care of the coordination of operations and communication of the group.

Learn more about Marlou!

Martin is 23 years old and comes from France. He was diagnosed with Ulcerative Colitis at age 17. UC is an Inflammatory Bowel Disease, which cannot currently be treated with current technology. He joined the Youth Group in 2018 as an EFCCA representative from the youth branch to keep on advocating for all patients' rights.

Learn more about Martin!

 

Patrik is a 25-year-old student living in Zadar. In 2011, when he was 18 years old, he was diagnosed with multiple sclerosis.
Patrik is a young MS advocate, who takes care of the rights of people suffering from MS. Patrik stands for the idea that the decision making in health care has to be done by the people living with MS and that these people could help in achieving an easier and better life. In 2016, he became the president of the local multiple sclerosis society in Zadar. 

Learn more about Patrik!

Ivett Jakab - young patient advocate 

Ivett is 28 years old and coming from Hungary. She had a liver transplant at the age of 16 due to a rare genetic disorder called Wilson’s disease. She is working with patient organisations on the physical and psycho-social rehabilitation of children, adolescents and their families after transplant. She joined the Youth Group in 2019.

Learn more about Ivett!