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Youth Group Members

Andreas is 28 years old and comes from Cyprus. When he was 17 he was diagnosed with IPT (inflammatory pseudotumor) disease. He is member of two organisations: the ‘Pancyprian Federation of Patients' Associations’ and ‘Friends & PASYKAF’. As the President of Youth Group, he provides leadership, direction and guidance, as well as coordinating operations and activities. He is also the main spokesperson of the group.

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Borislava is from Bulgaria, and she is 23 years old. She was kidney transplanted at the age of 15 and is part of the Youth Group since its creation. She is involved in the Bulgarian National Patient Organisation and in the Bulgarian Union of transplanted people.

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Jana is 27 years old and she is from Bulgaria. When she was 10 months old, she was diagnosed with SMA (Spinal Muscular Atrophy), Neuromuscular disorder. She is Executive Committee member of the European Alliance of Neuromuscular Disorders Associations (EAMDA) and member of the Bulgarian Association for Neuromuscular Diseases. She is also PhD student at the University of Sofia and works as a freelance journalist. 

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Lembe is a 21-year-old girl from Estonia. She was diagnosed with Juvenile Idiopathic Arthritis when she was 7. She is member of the Estonian Chamber of Disable People and is the person in charge of Social Media for the Youth Group.

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Louise is 20 years old and comes from Belgium. She was diagnosed with Type 1 Diabetes since a very early age. Louise joined the Youth Group in 2018 as representative of IDF Europe. She pledges to fight against stigma and discrimination with every power she has.

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Magdalena is 21 years old and comes from Sweden. She was diagnosed with CVID when she was 15 and has since then been involved in the Swedish organisation PIO. She also quite recently got more involved in the international organisation IPOPI as well and she joined the EPF youth group in 2018.

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Marlou is 26 years old and comes from the Netherlands. She has a rare disease called ‘Fabry’ and cooperates with the organisations EGAN (on genetics) and FSIGH (on Fabry).
She is one of the founding members of the Youth Group, and takes care of the coordination of operations and communication of the group.

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Martin is 23 years old and comes from France. He was diagnosed with Ulcerative Colitis at age 17. UC is an Inflammatory Bowel Disease, which cannot currently be treated with current technology. He joined the Youth Group in 2018 as an EFCCA representative from the youth branch to keep on advocating for all patients' rights.

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Patrik is a 25-year-old student living in Zadar. In 2011, when he was 18 years old, he was diagnosed with multiple sclerosis.
Patrik is a young MS advocate, who takes care of the rights of people suffering from MS. Patrik stands for the idea that the decision making in health care has to be done by the people living with MS and that these people could help in achieving an easier and better life. In 2016, he became the president of the local multiple sclerosis society in Zadar. 

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Yolita is 26 years old and she is from Bulgaria. She is part of the Confederation “Health Protection” and cooperates with self-help groups and other NGOs in prevention and addictions. She joined the Youth Group in 2012 and she is currently the Vice-President.

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