RESPECT

The European research project, being led by the Institute of Clinical Sciences at the Sahlgrenska Academy at Gothenburg University, Sweden, aims to identify the needs and motivations of children and their families who have participated or might participate in clinical trials in Europe. The project will further identify methods by which these needs can be translated into empowering and motivating participants in future clinical trials.

RESPECT is also exploring the ethical issues involved in children’s participation in medical research and are contacting ethical committees, patient support organisations, paediatric patients and their parents to gather their insights and suggestions. The sharing of the results of the project are expected to facilitate collaboration and information exchange between relevant clinical trials researchers.

RESPECT (Relating Expectations and Needs to the Participation and Empowerment of Children in Clinical Trials) is funded by the European Seventh Framework Programme (FP7). The project began on June 1, 2008 with a duration period of 36 months and a total project budget of 500.000 euros.

For additional information, please visit the project’s website:
www.patientneeds.eu