EUPATI Report from July's event & expert programme
The participants identified key activities that need to be followed up:
- Develop a framework for patient involvement with one set of guidelines for all parties (including regulators).
- Make the case for how patient involvement benefits research with a working group communicating concrete facts.
- Outline the steps needed to involve patients and advocates with a simple ‘how to’ checklist.
- Create key performance indicators for patient involvement with measures that cover quality, quantity and speed.
A number of volunteers will take these actions forward over the coming months to contribute making patient centricity in R&D a reality. “Patients have a lot to contribute, and the European Patients' Academy is working hard to empower them to do so” said EUPATI Director Jan Geissler.
The EUPATI Expert Training Course begins in early October for over 14 months with online and face-to-face education modules. “It will be an exciting and unique opportunity offering patient advocates expert-level training in medicines research and development, specifically tailored for them” said Nicola Bedlington, EPF Executive Director and Coordinator of EUPATI.
It is essential that patient advocates become qualified partners in medicines research and development to improve patient outcomes. The 55 applicants from 21 countries who were selected to follow the training will become significant actors in future research and development.
For more information, please contact EPF Executive Director Nicola Bedlington at firstname.lastname@example.org.