Associate Members
|
Associate members are organisations that represent patients' associations but do not meet the 5 EPF legitimacy criteria. Associate members participate to the EPF activities and policy work but cannot vote during the Annual General Assembly. |
|
Membership Members are patient organisations, but not solely. |
|
Organisations registered in an EU country or in a candidate country. |
|
Pan-European disease-specific organisations: represent less than 14 countries (but are aiming to expend their membership) National platforms: represent less than 10 diseases (but are aiming to expend their membership) |
|
Democracy Governing bodies are elected by the members and include patient representatives, but not solely. |
|
Accountability & Consultation Statements and opinions of EPF member organisations should reflect the views and opinions of their memberships and consultation procedures with those memberships should be put in place. |
|
Transparency EPF member organisations should generally disclose their sources of funding and make available their audited financial accounts. |
Legitimacy
Representation
Associate Members
- AGORA (Southern Europe)
- BAPD - Bulgarian Association for Patients Defence (Bulgaria)
- DEBRA International - Global Network of Epidermolysis Bullosa Support Groups (Europe)
- ECO - European Cleft Organisation (Europe)
- EFNA - European Federation of Neurological Associations (Europe)
- EIWH - European Institute of Women's Health (Europe)
- ENFA - European Network of Fibromyalgia Associations (Europe)
- FH Europe - The Familial Hypercholesterolaemia Network (Europe)
- Global Skin - International Alliance of Dermatology Patient Organisations (*International)
- Health and Social Care Alliance Scotland - The Alliance (Scotland)
- IBE - International Bureau for Epilepsy (International*)
- LPOT - Latvian Network of Patient Organizations (Latvia)
- Mental Health Europe (MHE-SME) (Europe)
- Patiëntenfederatie Nederland - National Coalition of Dutch Patients (The Netherlands)
- Sjögren Europe
- SAFE - Stroke Alliance for Europe (Europe)
- VPP - Flemish Patients' Platform (Belgium)
- WFIPP - World Federation of Incontinent Patients (International*)
* International organisations that do not have a formally constituted branch in Europe, but are active in the European region, may become Full members.