The Impact of the COVID-19 Pandemic on Patients & Patient Organisations

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COVID-19

We have been collecting reliable information on medicines and vaccine development, as well as research and perspectives from the field. We have also gathered responses and testimonies from patients with chronic conditions: explore the different sections of our COVID19 Resource Point, updated on a daily basis!

WHAT WE DO

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Policy and advocacy

EPF is active in a number of policy areas to ensure that patients' views are incorporated into the EU policy agenda. We develop campaign and advocacy strategies

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Projects

EPF has been active in various health-related EU projects over the past few years both as a leader or associate partner to gather patient-related evidence based information

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Capacity building

The Capacity Building Programme was designed in 2012 to respond to needs and concerns which have been identified by our membership during previous activities of EPF.

NEWS AND UPDATES

22/06/21 MEMBERS PATIENT INVOLVEMENT

Helping Europe’s carers of people with Parkinson’s is a “public health emergency”

Providing more support for Europe’s army of carers of people with Parkinson’s (PwPs) is a “public health emergency”, according to the EPDA’s Parkinson’s Carer’s Survey Report, published in early June.

22/06/21 EVENTS MEMBERS

29 June is World Scleroderma Day

FESCA, the Federation of European Scleroderma Associations, is ready to celebrate another World Scleroderma Day with a campaign to raise awareness of Scleroderma, also known as Systemic Sclerosis.

11/06/21 DATA PROTECTION PATIENT INVOLVEMENT ARTIFICIAL INTELLIGENCE

KBF Focus: Strengthening patients’ voices in the debate on AI in healthcare

This article is featured in the King Baudoin Foundation newsletter for June 2021.

Upcoming events

  • World Scleroderma Day

    June 29 is a day to recognise the bravery of those who live with scleroderma, and to demand equal treatment and equal care for people with scleroderma across Europe.

  • EVENTS PATIENT EMPOWERMENT PATIENT INVOLVEMENT

    EPF Congress 2021: The Digital Transformation of Healthcare

    From 26-29 October 2021, the European Patients’ Forum (EPF) will virtually convene experts, professionals, and patients to tackle the topic of digitalised healthcare.

Interested in becoming a member?

As your advocate, EPF provides many benefits to its members. We represent our members' voice at the European level on cross-cutting health issues.

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