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Youth Group Members

   

Borislava is President of the EPF Youth Group since September 2019. She comes from from Bulgaria, and has been a member of the Youth Group since its creation. She was kidney transplanted at the age of 15. She is involved in the Bulgarian National Patient Organisation and in the Bulgarian Union of transplanted people.

Learn more about Borislava!

Ivett is Vice-President of the EPF Youth Group and she comes from Hungary. She had a liver transplant at the age of 16 due to a rare genetic disorder called Wilson’s disease. She works with patient organisations on the physical and psycho-social rehabilitation of children, adolescents and their families after transplant. She joined the Youth Group in early 2019.

Learn more about Ivett!

Andreas comes from Cyprus. When he was 17 he was diagnosed with IPT (inflammatory pseudotumor) disease. He is member of two organisations: the ‘Pancyprian Federation of Patients' Associations’ and ‘Friends & PASYKAF’. He provides leadership, direction and guidance, as well as coordinating operations and activities. He is also the main spokesperson of the group.

Learn more about Andreas!
 

Yolita Pavlova is from Bulgaria and has been a member of the EPF Youth Group since 2012. She is also a young representative of the Confederation of Health Protection (KZZ) in Bulgaria and took part in the EMPATHY project in Brussels in 2013

Learn more about Yolita!

 

Jana is from Bulgaria: she was diagnosed with SMA (Spinal Muscular Atrophy), Neuromuscular disorder when she was 10 months old. She is a member of the Executive Committee of the European Alliance of Neuromuscular Disorders Associations (EAMDA) and member of the Bulgarian Association for Neuromuscular Diseases. She is also a PhD student at the University of Sofia and works as a freelance journalist. 

Learn more about Jana!

Lembe is from Estonia: she was diagnosed with Juvenile Idiopathic Arthritis when she was 7. She is a member of the Estonian Chamber of Disable People and is the person in charge of Social Media for the Youth Group.

Learn more about Lembe!

Louise comes from Belgium. She was diagnosed with Type 1 Diabetes from a very early age. Louise joined the Youth Group in 2018 as a representative of IDF Europe. She pledges to fight against stigma and discrimination with every power she has.

Learn more about Louise!

 

Magdalena comes from Sweden. She was diagnosed with CVID when she was 15 and has since then been involved in the Swedish organisation PIO. She also quite recently got more involved in the international organisation IPOPI as well and she joined the EPF Youth Group in 2018.

Learn more about Magdalena

Marlou comes from the Netherlands. She has a rare disease called ‘Fabry’ and cooperates with the organisations EGAN (on genetics) and FSIGH (on Fabry).
She is one of the founding members of the Youth Group, and takes care of the coordination of operations and communication of the group.

Learn more about Marlou!

Martin comes from France. He was diagnosed with Ulcerative Colitis at age 17. UC is an Inflammatory Bowel Disease (IBD), which cannot currently be treated with current technology. He joined the Youth Group in 2018 as an EFCCA representative from the youth branch to keep on advocating for all patients' rights.

Learn more about Martin!