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Amanda Bok

Amanda Bok is the CEO of the European Haemophilia Consortium. She has worked on behalf of patients with rare bleeding disorders since 2009, first globally through the World Federation of Hemophilia, and since 2012 at European level. Amanda has served as a patient representative on the European Commission Expert Group on Rare Diseases (2013-2016), on the European Reference Network EuroBloodNet (2016-2019) and is a EUPATI Fellow. She has a background in international humanitarian aid and development, and holds an MSc degree from the London School of Economics and Political Science (LSE).