Jana Popova

Jana Popova

Jana is from Bulgaria, and has SMA, a rare neuromuscular disorder.

Jana was diagnosed with SMA (Spinal Muscular Atrophy), Neuromuscular disorder when she was 10 months old. She is a member of the Executive Committee of the European Alliance of Neuromuscular Disorders Associations (EAMDA) and member of the Bulgarian Association for Neuromuscular Diseases. She is also a PhD student at the University of Sofia and works as a freelance journalist. 

Learn more about Jana!