Information for Patients
Information for patients is a subject that goes to the core of EPF' work and transcends much of what we do. EPF believes that ALL patients, no matter their condition, background or nationality, have a fundamental and legitimate human right of access to information about their health, medical conditions and the availability of treatments including knowledge of the best available management of their disease. It is a question of solidarity, equity and patients rights.
In 2016, EPF conducted a review of the "core quality principles" of the Pharmaceutical Forum via a short survey, assessing awareness of those principles and perceptions about their relevance to various health stakeholders. You can find the report here.
For further information on the major policy developments on information to patients, please visit the European Commission website.
EPF’s position statement on information to patients
EPF’s response to the Commission’s Consultation on Quality Principles in relation to Information to Patients
EPF’s response to the Commission consultation on the Diabetes Information Package
Reference Paper for EPF’s Input to the Pharmaceutical Forum’s Information to Patients’ Working Group - Development of a European Health Information & Governance Model
EPF’s response to Commission’s Draft Report on Current Practice with Regard to Provision of Information to Patients on Medicinal Products
EPF's response to the EC’s consultation on a legislative proposal on information to patients