Patient Link Workshop: High Impact Patient Advocacy
Nicola Bedlington set the scene by giving an overview of the patient involvement in EU-level health policy. This morning session went on to explore how to work most effectively with MEPs. An open space session in the afternoon enabled patient group representatives from throughout Europe and the US to voice the issues closest to their hearts and exchange good practice. The final morning session examined digital advocacy and specifically the lessons learned from the experience of the Dystonia Society UK that transformed the organisation through effective and strategic use of the website and social media.
For a copy of the presentations made at this event, please contact the EPF secretariat