Full Members

Full EPF members consist of:

1. pan-European disease-specific patients’ organisations and
2. national coalitions of patients organisations which represent at least 10 different disease groups.

Full membership of EPF shall require the following criteria:

• Legitimacy: EPF member organisations should have statutes registered in one of the member states of the European Union. If the applicant organisation is not registered in an EU Member State, additional information needs to be provided demonstrating EU focus and activities.
• Representation: EPF member organisations should have members of their own in more than half of the member states of the European Union.
• Democracy: EPF member organisations should have governing bodies, which are elected by their members, who shall be patients, their carers, or their elected representatives.
• Accountability and Consultation: Statements and opinions of EPF member organisations should reflect the views and opinions of their members and consultation procedures with those members should be put in place.
• Transparency: EPF member organisations should generally disclose their sources of funding and generally make available their audited financial accounts.

 Please have a look at the list of our full members below (alphabetical order):

last update/name of the organisation