Towards a patient-centred EU mandate: Health policy with and for patients

EPF High-Level Policy Event | 16 October 2024, Brussels, Belgium

Time: 12:00 – 18:00 CET

Venue: Renaissance Hotel, Rue du Parnasse 19, 1050 Brussels

The high-level policy event aims to conclude EPF’s EU elections campaign by bringing together decision-makers, Members of the European Parliament (MEPs) and EPF members in a conversation about the consolidation of patient involvement in health policy in the new EU mandate.

Building on the Patient Organisations’ Manifesto adopted at EPF’s 20th anniversary event in 2023, this event will analyse the progress in putting systemic patient involvement on the policy agenda and celebrate commitments made by candidates to support it during their mandate. 

This will be the first EPF event organised during the 2024-2029 EU political mandate. It will aim to build connections and start the work in the new EP to involve patients and patient organisations at all levels of policy making. In addition, it has the potential to promote this topic on the agenda of the next EU Commission, by building awareness and support ahead of the Commissioner hearings in the EP. 

See the provisional agenda here

See the biographies of the speakers here.

Opening remarks by:

Marco Greco, President, European Patients’ Forum

Online intervention by Stella Kyriakides, Commissioner for Health and Food Safety, European Commission

Video message by Hans Kluge, Regional Director for Europe, World Health Organization Regional Office for Europe

Session 1: Patient involvement across the healthcare continuum - moderated by Anca Toma, Executive Director, European Patients’ Forum - with the following speakers: 

Melanie Carr, Head of Stakeholders and Communications Division, European Medicines Agency

Marko Korenjak, President, European Liver Patients’ Association

Maya Matthews, Head of Unit, State of Health, European Semester, Health Technology Assessment, DG SANTE, European Commission

Frederico Guanais, Deputy Head of the Health Division, Organisation for Economic Cooperation and Development

Nathalie Moll, Director General, European Federation of Pharmaceutical Industries and Associations

Fireside chats with MEPs:

Adam Jarubas, European People’s Party (EPP), Poland

András Tivadar Kulja, EPP, Hungary

Ondřej Dostál, Non-attached, Czechia

Session 2: Supporting an effective patient movement: challenges and opportunities - moderated by Elisabeth Kasilingam, Vice-President,
European Patients’ Forum & CEO, European Multiple Sclerosis Platform - with the following speakers: 

Baiba Ziemele, Board Chair, Latvian Network of Patient Organisations

Martin Danner, Secretary General, BAG Selbsthilfe Germany

Konstantina Boumaki, Board member & Youth Group member, European Patients’ Forum

Ildiko Vajda, Senior Advisor Digital Healthcare, Dutch Patients Federation

Fireside chats with MEPs:

Tilly Metz, Greens, Luxembourg

Vytenis Povilas Andriukaitis, Socialists & Democrats (S&D), Lithuania

Kateřina Konečná, Non-attached, Czechia

Stine Bosse, Renew Europe, Denmark

Closing remarks by:

Natasha Azzopardi-Muscat, Director, Division of Country Health Policies and Systems, World Health Organization Regional Office for Europe

Anca Toma, Executive Director, European Patients’ Forum

Moderator: Katrina Sichel