Members
Our members are the backbone of our work: their perspective brings an irreplaceable added value to our policy and advocacy activities.
We currently represent 78 patient organisations representing 19 countries and an estimated 150 million patients across Europe
Towards a wider Europe. Our ambition is to become a reference point for the EU, European organisations and other stakeholders such as WHO Europe, healthcare professionals and health minded organisations seeking patients’ and patient groups’ opinions.
We have adopted a new Constitution, now allowing organisations based in all of Europe to become members of EPF.
By joining EPF, you will be part of Europe’s strongest collective patients’ voice promoting public health issues surrounding equitable access, affordability and quality of healthcare at EU level. EPF aims to be as transparent, democratic and inclusive as possible.
Download the full list of EPF Members here or click below on any of our patient organisations:
- Alzheimer Europe
- AGORA
- AMRC - Association of Medical Research Charities(2)
- AOECS - Association of European Coeliac Societies
- AOPP - Association for the Protection of Patients' Rights (Slovak Republic)
- BAG Selbsthilfe
- BAPD - Bulgarian Association for Patients Defence
- COPAC - Coalition of Patients' Organisations with Chronic Diseases (Romania)
- Cystic Fybrosis Europe
- DEBRA International - Global Network of Epidermolysis Bullosa Support Groups
- DE - Dystonia Europe
- Digestive Cancers Europe
- EAMDA - European Alliance of Neuromuscular Disorders Associations
- EATG - European Aids Treatment Group
- ECHDO – European Congenital Heart Disease Organisation
- ECO - European Cleft Organisation
- EFA - European Federation of Allergy and Airways Diseases Patients' Associations
- EFAPH - European Federation of Associations of Patients with Haemochromatosis
- EFCCA - European Federation of Crohn's and Ulcerative Colitis Associations
- EFHPA - European Federation of Homeopathic Patients' Associations
- EFNA - European Federation of Neurological Associations
- EGAN - Patients Network for Medical Research and Health
- EHC - European Haemophilia Consortium
- EHLTF - European Heart and Lung Transplant Federation
- EKPF - European Kidney Patients' Federation
- EIWH - European Institute of Women's Health
- ELPA - European Liver Patients’ Association
- EMHA - European Migraine and Headache Alliance
- EMSP - European Multiple Sclerosis Platform
- ENFA - European Network of Fibromyalgia Associations
- ENUSP - European Network of (ex)users and survivors of psychiatry (ENUSP)
- EPDA - European Parkinson's Disease Association
- EPIK - Estonian Chamber of Disabled People
- EUFAMI - European Federation of Associations of Families of People with Mental Illness
- EUROPADONNA - European Breast Cancer Coalition
- EUROPA Uomo - The Voice of Men with Prostate Cancer in Europe
- EUROPSO - European Umbrella Organisation for Psoriasis Movements
- EURORDIS - European Organisation for Rare Diseases
- FE - Fertility Europe
- FEP - Spanish Patients' Forum
- FESCA- Federation of European Scleroderma Associations
- FH Europe - The European FH Patient Network
- FPP - Federation of Polish Patients
- GAMIAN-Europe - Global Alliance of Mental Illness Advocacy Networks
- Global Heart Hub - The Alliance of Heart Patient Organisations
- Global Skin - International Alliance of Dermatology Patient Organizations
- Greek Patients Association
- HAPO - Hungarian Alliance of Patients' Organisations
- Health and Social Care Alliance Scotland - The Alliance
- Hungarian Osteoporosis Patient Association (HOPA)
- IBE - International Bureau for Epilepsy
- IDF Europe - International Diabetes Federation European Region
- IF - International Federation for Spina Bifida and Hydrocephalus
- IOF - International Osteoporosis Foundation
- IPOPI - International Patient Organisation for Primary Immunodeficiencies
- KUZ - Coalition of Association in Healthcare (Croatia)
- KZZ - Confederation of Health Protections
- LPOAT - Council of Representatives of Patients’ organizations (Lithuania)
- LUCE - Lung Cancer Europe
- LUPUS Europe
- MHN - Malta Health Network
- Medical Research Charities Group (MRCG)
- Mental Health Europe (MHE-SME)
- National Voices (England)
- NCDP – National Confederation of Disabled People
- NPO - National Patients' Organisation (Bulgaria)
- Pancyprian Federation Of Patients Associations and Friends (Cyprus)
- Patiëntenfederatie Nederland - National Coalition of Dutch Patients
- PHA Europe - Pulmonary Hypertension Association Europe
- Plataforma de Organizaciones de Patientes
- RI - Retina International
- Stroke Alliance for Europe - SAFE
- SUSTENTO - The Latvian Umbrella Body For Disability Organization
- Swedish Disability Rights Federation
- VPP - Flemish Patients' Platform
- WFIP - World Federation of Incontinent Patients
- World Duchenne Organisation