LSE Survey on patients' and their caregivers' perceptions of health


About the project

The London School of Economics (LSE) is leading an EU-funded research project, Advance-HTA, looking at aspects of health technology assessment (a method used to determine where and how new treatments should be introduced into a national healthcare system). The goal is to work with a range of stakeholders to explore how the methods used in HTA can be improved to better meet the needs of both patients and modern healthcare systems. There are 13 institutions involved in the research from a number of EU countries and North America.

Measuring patients' experience in quality of life

One area of particular interest is the way in which patients’ experience in quality of life is measured.  Currently, a tool called EQ-5D-5L is used but there is considerable discussion about how well this reflects the aspects of health-related quality of life that matter to people living with an illness.

Take the survey!

We are asking patients with a range of illnesses, from a number of countries, to complete a short questionnaire aimed at finding out ‘Does EQ-5D-5L accurately and reliably reflect the aspects of their health that matter most to patients?’. This is important because it will help ensure that the things that matter to patients are at the heart of future decisions about access to medicines.

The questionnaire will take approximately 5mintues to complete and can be found at the following link:  

Disseminate it! 

Please do not hesitate to forward the link to other patients you know in Europe who are able to understand English well enough to complete the questionnaire. 

Survey for family members and informal carers

Another version of the questionnaire has been developed to capture the responses of the caregivers who are providing support and care for patients. If you know any family members and friends who are caring for a patient, please provide them with the following link to complete the questionnaire:

Each questionnaire must be completed in one sitting and all responses are anonymous.

More information

More information about the project and the institutions involved can be found at the dedicated website.