Associate Members

Associate members are organisations that represent patients' associations but do not meet the 5 EPF legitimacy criteria.

Associate members participate to the EPF activities and policy work but cannot vote during the Annual General Assembly.

Membership

Members are patient organisations, but not solely.

Legitimacy

Organisations registered in an EU country or in a candidate country.

Representation

Pan-European disease-specific organisations: represent less than 14 countries (but are aiming to expend their membership)

National platforms: represent less than 10 diseases (but are aiming to expend their membership)

Democracy

Governing bodies are elected by the members and include patient representatives, but not solely.

Accountability & Consultation

Statements and opinions of EPF member organisations should reflect the views and opinions of their memberships and consultation procedures with those memberships should be put in place.

Transparency

EPF member organisations should generally disclose their sources of funding and make available their audited financial accounts.