Associate Members
Associate members are organisations that represent patients' associations but do not meet the 5 EPF legitimacy criteria. Associate members participate to the EPF activities and policy work but cannot vote during the Annual General Assembly. |
Membership Members are patient organisations, but not solely. |
Organisations registered in an EU country or in a candidate country. |
Pan-European disease-specific organisations: represent less than 14 countries (but are aiming to expend their membership) National platforms: represent less than 10 diseases (but are aiming to expend their membership) |
Democracy Governing bodies are elected by the members and include patient representatives, but not solely. |
Accountability & Consultation Statements and opinions of EPF member organisations should reflect the views and opinions of their memberships and consultation procedures with those memberships should be put in place. |
Transparency EPF member organisations should generally disclose their sources of funding and make available their audited financial accounts. |
Associate Members
- AGORA
- BAPD - Bulgarian Association for Patients Defence
- DEBRA International - Global Network of Epidermolysis Bullosa Support Groups
- ECO - European Cleft Organisation
- EFNA - European Federation of Neurological Associations
- EIWH - European Institute of Women's Health
- ENFA - European Network of Fibromyalgia Associations
- FH Europe - The Familial Hypercholesterolaemia Network
- Global Skin - International Alliance of Dermatology Patient Organizations
- Health and Social Care Alliance Scotland - The Alliance
- Hungarian Osteoporosis Patient Association (HOPA)
- IBE - International Bureau for Epilepsy
- LPOT - Latvian Network of Patient Organizations
- Mental Health Europe (MHE-SME)
- NAPO - National Association of Patients' Organizations
- Patiëntenfederatie Nederland - National Coalition of Dutch Patients
- Sjögren Europe
- Stroke Alliance for Europe - SAFE
- VPP - Flemish Patients' Platform
- WFIP - World Federation of Incontinent Patients