Associate members are organisations that represent patients' associations but do not meet the 5 EPF legitimacy criteria.
Associate members participate to the EPF activities and policy work but cannot vote during the Annual General Assembly.
Members are patient organisations, but not solely.
Organisations registered in an EU country or in a candidate country.
Pan-European disease-specific organisations: represent less than 14 countries (but are aiming to expend their membership)
National platforms: represent less than 10 diseases (but are aiming to expend their membership)
Governing bodies are elected by the members and include patient representatives, but not solely.
Accountability & Consultation
Statements and opinions of EPF member organisations should reflect the views and opinions of their memberships and consultation procedures with those memberships should be put in place.
EPF member organisations should generally disclose their sources of funding and make available their audited financial accounts.
- AGORA (Southern Europe)
- BAPD - Bulgarian Association for Patients Defence (Bulgaria)
- DEBRA International - Global Network of Epidermolysis Bullosa Support Groups (Europe)
- ECO - European Cleft Organisation (Europe)
- EFNA - European Federation of Neurological Associations (Europe)
- EIWH - European Institute of Women's Health (Europe)
- ENFA - European Network of Fibromyalgia Associations (Europe)
- FH Europe - The Familial Hypercholesterolaemia Network (Europe)
- Global Skin - International Alliance of Dermatology Patient Organisations (*International)
- Health and Social Care Alliance Scotland - The Alliance (Scotland)
- IBE - International Bureau for Epilepsy (International*)
- LPOT - Latvian Network of Patient Organizations (Latvia)
- Mental Health Europe (MHE-SME) (Europe)
- Patiëntenfederatie Nederland - National Coalition of Dutch Patients (The Netherlands)
- Sjögren Europe
- SAFE - Stroke Alliance for Europe (Europe)
- VPP - Flemish Patients' Platform (Belgium)
- WFIPP - World Federation of Incontinent Patients (International*)
* International organisations that do not have a formally constituted branch in Europe, but are active in the European region, may become Full members.