Full Members

EPF Full members consist of patient organisations who meet the 5 following criteria:


EPF member organisations should be registered in one of the EU member states.


EPF members should have governing bodies, which are elected by their members, who shall be patients, their carers, or their elected representatives.


EPF pan-European disease-specific organisations should have members of their own in more than half of the EU member states.
National platforms should represent at least 10 different disease groups to be accepted as Full members

Accountability & Consultation

Statements and opinions should reflect the views and opinions of their memberships, and consultation procedures with those memberships should be put in place.


EPF members should disclose their sources of funding and make their audited financial accounts available.

Full Members

* International organisations that do not have a formally constituted branch in Europe, but are active in the European region, may become Full members.