Full Members
EPF Full members consist of patient organisations who meet the 5 following criteria:
Legitimacy EPF member organisations should be registered in one of the EU member states. |
Democracy EPF members should have governing bodies, which are elected by their members, who shall be patients, their carers, or their elected representatives. |
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EPF pan-European disease-specific organisations should have members of their own in more than half of the EU member states. |
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Accountability & Consultation Statements and opinions should reflect the views and opinions of their memberships, and consultation procedures with those memberships should be put in place. |
Transparency EPF members should disclose their sources of funding and make their audited financial accounts available. |
Representation
Full Members
- Alzheimer Europe
- AOECS - Association of European Coeliac Societies
- AOPP - Association for the Protection of Patients' Rights (Slovak Republic)
- BAG Selbsthilfe
- COPAC - Coalition of Patients' Organisations with Chronic Diseases (Romania)
- Cystic Fybrosis Europe
- DE - Dystonia Europe
- Digestive Cancers Europe
- EAMDA - European Alliance of Neuromuscular Disorders Associations
- EATG - European Aids Treatment Group
- ECHDO – European Congenital Heart Disease Organisation
- EFA - European Federation of Allergy and Airways Diseases Patients' Associations
- EFAPH - European Federation of Associations of Patients with Haemochromatosis
- EFCCA - European Federation of Crohn's and Ulcerative Colitis Associations
- EFHPA - European Federation of Homeopathic Patients' Associations
- EGAN - Patients Network for Medical Research and Health
- EHC - European Haemophilia Consortium
- EHLTF - European Heart and Lung Transplant Federation
- EKPF - European Kidney Patients' Federation
- ELPA - European Liver Patients’ Association
- EMHA - European Migraine and Headache Alliance
- EMSP - European Multiple Sclerosis Platform
- ENUSP - European Network of (ex)users and survivors of psychiatry (ENUSP)
- EPDA - European Parkinson's Disease Association
- EPIK - Estonian Chamber of Disabled People
- EUFAMI - European Federation of Associations of Families of People with Mental Illness
- EUROPADONNA - European Breast Cancer Coalition
- EUROPA UOMO - The European Prostate Cancer Coalition
- EUROPSO - European Umbrella Organisation for Psoriasis Movements
- EURORDIS - European Organisation for Rare Diseases
- FE - Fertility Europe
- FEP - Spanish Patients' Forum
- FESCA- Federation of European Scleroderma Associations
- FPP - Federation of Polish Patients
- GAMIAN-Europe - Global Alliance of Mental Illness Advocacy Networks
- Global Heart Hub - The Alliance of Heart Patient Organisations
- Greek Patients Association
- HAPO - Hungarian Alliance of Patients' Organisations
- IDF Europe - International Diabetes Federation European Region
- IF - International Federation for Spina Bifida and Hydrocephalus
- IOF - International Osteoporosis Foundation
- IPOPI - International Patient Organisation for Primary Immunodeficiencies
- KUZ - Coalition of Association in Healthcare (Croatia)
- KZZ - Confederation of Health Protections
- LPOAT - Council of Representatives of Patients’ organizations (Lithuania)
- LUCE - Lung Cancer Europe
- LUPUS Europe
- MHN - Malta Health Network
- NAPO - National Association of Patients' Organizations
- NCDP – National Confederation of Disabled People
- NPO - National Patients' Organisation (Bulgaria)
- Pancyprian Federation Of Patients Associations and Friends (Cyprus)
- PHA Europe - Pulmonary Hypertension Association Europe
- Plataforma de Organizaciones de Patientes
- RI - Retina International
- SOSTE - Finnish Federation for Social Affairs and Health
- SUSTENTO - The Latvian Umbrella Body For Disability Organization
- Swedish Disability Rights Federation
- WAPO - World Alliance of Pituitary Organizations
- World Duchenne Organization