ECHDO – European Congenital Heart Disease Organisation
ECHDO is an umbrella association representing associations of patients with congenital heart disease. ECHDO works to increase understanding of CHD and support for patients of all ages: babies, children and GUCHs (grown-ups with congenital heart disease) in Europe; provide up-to-date information about CHD to patients and their families; lobby for European standards on medical and psychosocial care of CHD patients, including access to safe medicines; share information about research studies and patients’ experiences within Europe; stimulate the development of national CHD support networks; and increase its impact by liaising with other European networks.
Type: pan-European disease-specific organisation
Disease area: Congenital Heart Disease
Representative: Katja Laine, President
Elzenlaan 20, 2390 Westmalle
For more information, please visit ECHDO's website: http://echdo.eu/