EURORDIS - European Organisation for Rare Diseases

The European Organisation for Rare Diseases (EURORDIS) is the voice of 30 million people affected by rare diseases throughout Europe. EURORDIS is a non-governmental patient-driven alliance of organisations and individuals active in the field of rare diseases in Europe. EURORDIS represents 695 rare disease patient organisations in 63 countries, covering more than 4000 rare diseases. EURORDIS supports the creation and development of rare disease national alliances and disease-specific European federations and networks. 

Type: pan-European disease-specific organisation

Disease area: Rare diseases

Representative: Jean-Louis Roux, Public Affairs Director

c/o Plateforme Maladies Rares
102, rue Didot
75014 PARIS

Tel:  +32 2 535 75 23