EFAPH - European Federation of Associations of Patients with Haemochromatosis
The European Federation of Associations of Patients with Haemochromatosis aims to:
(1) inform patients, the general public and medical doctors in Europe about this disease and to guide individuals and family screening through reliable testing.
(2) increase awareness and to educate the general public and health professionals about the dangers of the disease. To promote and share the best practices so that patients can have the same chances of treatment and therefore of survival.
(3) support: to provide psychosocial and legal support to patients and their relatives; to support research in iron metabolism, particularly in Haemochromatosis.
Type: pan-European disease-specific organisation
Disease area: Haemochromatosis is due to a progressive and excess iron storage in the body. If not treated it may lead to serious diseases on target organs or vital organs such as liver, heart, pancreas, joints and in extreme cases may lead to death. Haemochromatosis is hereditary.
Representative: Françoise Courtois
EFAPH General Secretary
Dr. Francoise Courtois
4 rue Paul Demange
78290 Croissy Sur Seine
Tel.: +33 (0) 6 08 25 94 04