IPOPI - International Patient Organisation for Primary Immunodeficiencies
IPOPI, the International Patient Organisation for Primary Immunodeficiencies, is the Association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency (PID) patients worldwide. Established in 1992, IPOPI works as the global advocate for the PID patient community in cooperation with its National Member Organisations (NMOs) and key PID stakeholders.
Type: pan-European disease-specific organisation
Disease area: Primary immunodeficiency (PID).Primary Immunodeficiencies (PIDs) are a large and growing group of over 250 different disorders caused when some components of the immune system (mainly cells and proteins) do not work properly.
Representative: Johan Prévôt
Firside Main Road Downderry
Cornwall PL11 3LE
Tel: +351 21 407 5720