IPOPI - International Patient Organisation for Primary Immunodeficiencies

IPOPI, the International Patient Organisation for Primary Immunodeficiencies, is the Association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency (PID) patients worldwide. Established in 1992, IPOPI works as the global advocate for the PID patient community in cooperation with its National Member Organisations (NMOs) and key PID stakeholders.

Type: pan-European disease-specific organisation

Disease area: Primary immunodeficiency (PID).Primary Immunodeficiencies (PIDs) are a large and growing group of over 250 different disorders caused when some components of the immune system (mainly cells and proteins) do not work properly.

Representative: Johan Prévôt 

UK office
Firside Main Road Downderry 
Cornwall PL11 3LE 
United Kingdom 

Contact details: 
Email: johan@ipopi.net
Tel: +351 21 407 5720
Website: www.ipopi.org