Survey results: Assessing AI Awareness and Perceptions among Patient Organisations

EPF began engaging in Artificial Intelligence (AI) in healthcare in 2020, from both a policy and a capacity building perspective. Given the rapid increase of interest in AI in healthcare and in view of upcoming policy activities, EPF has decided to reinforce its engagement on this matter to ensure that the patients’ views, needs and values are adequately represented in future discussions and EU-level debates. We did this, i.e., with a survey on AI awareness and perceptions.


The survey was finalised. Read the results >here<.


How did we assess AI awareness and perceptions among patient organisations with this survey?

In the Spring of 2023, EPF collected responses to a survey addressed to patients’ organisations or individuals carrying out patient advocacy activities. An in-depth knowledge of AI in the area of healthcare was not a pre-requirement for completing this survey as questions were primarily about experience and perception. In that respect, there were no wrong or right answers.

How could you be involved?

If you represented a patient organization or were an individual carrying out patient advocacy activities, you could complete the survey that was available in English, Dutch, Bulgarian, Spanish, Finnish, French, Greek, Croatian, Latvian, Lithuanian, Maltese, German, Polish, Romanian and Swedish.

How are the survey responses being used?

This survey serves as a starting point to collect patient organisations’ and patient advocates' views on this topic and build a stronger knowledge base. The survey allows us to collect information on a series of key questions revolving around AI, including the main challenges and obstacles to its safe, ethical and efficient implementation in healthcare, and the level of knowledge needed to engage on this topic.

The results of the survey have guided EPF’s position paper on AI and will serve as an additional evidence base for our policy and advocacy activities at the EU level. The survey results and the position paper are made available for free on EPF's website.


For further details, more information about AI in healthcare, and any kind of support, please do not hesitate to contact EPF Policy Officer, Milana Trucl at