Policy & Research
In this section, you will find direct links to all key reports and documents produced by EPF on the topic of Artificial Intelligence.
The paper aims to provide an overview of two areas of technology that are particularly in the focus of EU policy: big data, and artificial intelligence. Its purpose is to support the engagement of patient organisations in EU policy discussions around digital health, with special focus on the above-mentioned topics, in line with our commitment to bringing a meaningful and robust patient perspective into EU policy debates.
The EPF Response to the European Commission Consultation on the AI White Paper, developed in consultation with EPF members, covers the key areas of concerns for EPF related to the implementation of AI in Healthcare. In particular: the need to address specific health challenges; the importance of date for safer and better AI; Transparent, effective, and sustainable AI research and innovation; Improve European coordination on AI; Boost skills and digital health literacy as a precondition to exploit AI at European level; Defining ‘risk’ for AI applications in healthcare; Establish assessment mechanisms for safe and ethical AI in healthcare; A fit-for-purpose regulatory framework to increase trust on AI.
EPF Response to the European Commission Consultation on the European Health Data Space and AI ethical and legal requirements (2021)
In our response to the European Commission Consultation on the European Health Data Space , we addressed how AI will fit in the EHDS initiative, with a particular attention to ethical risks and the new relationship between patients and healthcare professionals. Furthermore, EPF has also provided short feedback to the European Commission's AI - ethical and legal requirements consultation, mainly building on the documents listed above.
AI in Healthcare and the Patient's Perspective - reports:
The EU Policy and Legislative Framework on Artificial Intelligence (2022) - Jacqueline del Castillo and Lydia Nicholas
This report presents findings from research commissioned by the European Patients’ Forum (EPF) to understand the current state of European policy and legislation as it pertains to artificial intelligence (AI) in healthcare. The research involved in-depth interviews with AI policy experts and deployment actors in healthcare, webinars with patient advocates organised by EPF, and a micro survey informing the interviews.
Keep reading here.
Artificial Intelligence in Healthcare from a Patient’s Perspective (2022) - Jacqueline del Castillo and Lydia Nicholas
This report presents findings from research sponsored by the European Patients’ Forum (EPF) to understand the opportunities and challenges of deploying AI in health from a patient perspective. It surfaced views from eighteen AI deployment actors across Europe, disease conditions and advocacy priorities. Findings clustered around four themes: experiencing AI, understanding AI, patient involvement, and deployment challenges.
Keep reading here.
Find an accompanying infographic here.
For a broader overview on our work on digital health and health data (e.g., on the European Health Data Space), please visit our dedicated policy page.