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Newsletter

Latest EPF News

Welcome to EPF’s news section, the central resource to stay tuned about our latest developments!

Press release: Patient organisations call for guarantee of voting rights and meaningful involvement at the EMA
12 June 2025
International Clinical Trials Day: Advancing patient-centred research
20 May 2025
Call for Patient Representatives to Join the Patient Advisory Group for the PROACT EU-Response Project
14 May 2025
Leading EU Public Health MEPs endorse the EU4Health Civil Society Alliance's call for sustainable support
14 May 2025
Data Saves Lives launches toolkit on the European Health Data Space
12 May 2025
Open Letter from NGOs to the EU Commission - The importance of operating grants for civil society organisations in the field of health
10 April 2025
Civil society and EU policymakers outline recommendations to strengthen the EU Health Union
9 April 2025
Understanding patients’ rights in the European Health Data Space
3 April 2025
Health crisis preparedness: Towards a meaningful whole-of-society approach
2 April 2025
EPF launches “We Are Here”: A Call for a Patient-Centred Future for Health
17 March 2025
The EU4Health Civil Society Alliance expresses concerns about the lack of information on the EU4Health work programme 2025
13 March 2025
Five Years After COVID-19: Lessons Learned and the Path Forward
11 March 2025
EPF releases statement on the European Commission's proposal for the critical medicines act
11 March 2025
Call to protect and strengthen meaningful Patient Involvement in EMA Decision-Making
10 March 2025
EPF interviews MEP Tilly Metz for International Women’s Day
8 March 2025
Position paper on the Critical Medicines Alliance’s Strategic Report
3 March 2025
Informing and empowering patients through accessible and clear information on medicines
28 February 2025
The EU4Health Civil Society Alliance expresses concerns about restrictions on civil society’s activities
10 February 2025
EPF examines the EHDS Regulation and its implications for patients
6 February 2025
European partnership launches major initiative to strengthen pandemic preparedness through clinical trial networks
30 January 2025
EPF releases policy paper with testimonials from patients on AMR
15 January 2025
EPF’s policy priorities for the new EU mandate
7 January 2025
2025
7 January 2025
Celebrating five years of impact with Data Saves Lives
13 December 2024
EPF congratulates new European Commission and emphasises collaborative efforts for patient-centred healthcare
3 December 2024
EPF's survey on the implementation of the EU Medical Devices Regulations
2 December 2024
EPF's feedback on joint scientific consultations on medical devices
29 November 2024
Ensuring Consistent and Coherent Application of EU Rules on Medicines’ Advertising
19 November 2024
EPF launches toolkit to help patient organisations raise awareness on Antimicrobial Resistance
18 November 2024
EPF joins a Statement in Support of the NSA Engagement Plan
30 October 2024
EPF’s reaction to the draft Implementing Act on Joint Scientific Consultations on Medicines
29 October 2024
Towards a patient-centred EU mandate: Health policy with and for patients
17 October 2024
EPF warns against rushed revision of the EU Medical Devices Regulations
15 October 2024
EPF Advocacy Toolkit on the Revision of the EU Pharmaceutical Legislation
1 October 2024
Call for greater involvement of patient organisations to address AMR
27 September 2024
EU4Health Civil Society Alliance concerned about the role of health in the next commission mandate
25 September 2024
World Patient Safety Day
17 September 2024
Empowering Patients in HTA: Joint Initiative by OPEN Health, EPF, and EAMDA to Optimise PICO Scoping
9 September 2024
Call for Patients EDiHTA
5 August 2024
Call for patients who have experienced Antimicrobial Resistance (AMR)
24 July 2024
EPF’s feedback on the Implementing Act on HTA cooperation with EMA
24 July 2024
The EU4Health Civil Society Alliance Appeals to President von der Leyen to appoint a Vice-President for Health, Wellbeing and Social Rights
11 July 2024
EPF’s analysis of the European Parliament reports on the revision of the EU pharmaceutical legislation
28 June 2024
2023 At A Glance
28 June 2024
EPF’s feedback on the draft Implementing Act for Assessing and Managing Conflict of Interest in HTA
26 June 2024
Future of the European Health Union
24 June 2024
Latest EPF’s participation at policy and stakeholder events – A recap
21 June 2024
10 Key Recommendations for Enhancing Joint Clinical Assessments Under the EU HTA Regulation
13 June 2024
European Patients’ Forum Calls on New MEPs to Prioritise Health in the EU Agenda
11 June 2024
New webinar series: Amplifying patient advocacy on Antimicrobial Resistance (AMR)
23 May 2024
SAVE THE DATE! EPF to host a high level policy event in october
22 May 2024
Call for Interest: Join the IDERHA Patient Advisory Board
30 April 2024
EPF receives Operating Grant
19 April 2024
AGM 2024
16 April 2024
EPF’s reaction to the European Parliament’s position on the revision of the EU pharmaceutical legislation
10 April 2024
EPF feedback on the implementing act on joint clinical assessments of medicinal products
3 April 2024
Provisional Agreement on EHDS
15 March 2024
EPF receives the Outstanding Contribution to Health Award
12 March 2024
Upcoming EU Strategic Agenda 2024-2029
12 March 2024
Pandemic Anniversary
12 March 2024
Advancing patients’ access to medicines in the pharmaceutical legislation
7 March 2024
Shaping the EU pharmaceutical legislation for patients – EPF to release advocacy toolkit for members
28 February 2024
OP-ED | Julie Spony on "Supporting patient-centred innovation: the value of patient experience data"
26 February 2024
The European Patients' Forum contributes to the Health Emergency Preparedness and Response Authority’s (HERA) review
22 February 2024
EPF reacts to the European Commission Proposal on transitional provisions under the IVDR and roll-out of EUDAMED
9 February 2024
EPF launches European Elections campaign 2024
1 February 2024
Call for Interest: Join the HEU-EFS Patient Advisory Group
1 February 2024
EPF submits Operating Grant application under EU4Health
31 January 2024
Joint letter on EU4Health budget cuts
29 January 2024
EPF’s call for action to ensure patients’ continued access to safe, high-quality medicines across the EU
15 January 2024
EPF's interim evaluation of the EU4Health Programme 2021-2027
9 January 2024
EPF's reaction to the European Parliament’s adoption of the European Health Data Space report
13 December 2023
EPF’s Statement for the European Antibiotic Awareness Day
17 November 2023
EPF response to the European Commission’s call for feedback on the revision of the EU Pharmaceutical Legislation
7 November 2023
EPF’s position on establishing an opt-out system for the secondary use of health data
26 October 2023
NEW READ: survey results on The Welfare of Patients with Chronic Diseases during COVID-19
25 October 2023
AI in Healthcare: Advancing Patient-Centric Care through Co-design and Responsible Implementation
18 October 2023
A patient-centred vision for Unmet medical needs
16 October 2023
EPF's reaction to the draft reports on the revision of EU pharmaceutical legislation
12 October 2023
The European Patients’ Forum calls for ensuring access to paediatric medicines
5 October 2023
The European Patient's Forum mourns the death of Noël Wathion, former EMA Deputy Executive Director
16 August 2023
The European Patients’ Forum calls for a patient-centred revision of the EU pharmaceutical legislation
13 July 2023
EPF position statement EU4Health priorities
6 June 2023
20 Years Stronger
5 May 2023
Stepping up the involvement of the patient community in the fight against AMR
5 May 2023
2023 AGM
4 May 2023
EPF's reaction to pharmaceutical legislation revision
26 April 2023
EPF 20 | Nicola Bedlington shares her story in The European Patients' Podcast
31 March 2023
EPF co-signs joint statement calling for a society-centred EHDS
21 March 2023
EU to grant extra time for implementation MDR
20 March 2023
EPF meets with health Commissioner Kyriakides and Commission Vice-President Schinas on pharmaceutical legislation
7 March 2023
EPF's reaction to the proposed amendments of the Medical Devices Regulation
11 January 2023
Happy 2023 from EPF President Marco Greco
9 January 2023
2024
9 January 2023
2023
9 January 2023
EU4Health Civil Society Alliance Joint Position Paper
15 December 2022
EPF Report - Health in the European Semester 2022
15 December 2022
EPF co-signs contribution to consultation on cross-border activities of associations
9 December 2022
EPF's call for action on MDR
5 December 2022
EPF Statement on EHDS
28 November 2022

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