About Us

Who we are

The European Patients’ Forum (EPF) is an independent non-profit, non-governmental umbrella organisation of patient organisations across Europe and across disease-areas. Our 75 members include disease-specific patient groups active at EU level and national coalitions of patients.

Our Vision is:

A Europe where patient organisations are valued partners in creating equitable, person-centered, accessible, and sustainable healthcare systems, based on patients’ unique expertise.

Our Mission is:

To advance the interests of patients and patients’ communities by strengthening their collective impact across Europe through effective advocacy, education, empowerment, and partnership.

Our five (5) core strategic goals as defined in the 2021-2026 Strategic Plan:

1: SHAPING A NEW EUROPEAN AGENDA FOR PATIENTS

EPF will support strong European health cooperation in order to derive and apply key lessons from major challenges, including the COVID-19 pandemic, for future health systems that deliver [a new deal] for patients. Patients are central to identifying and shaping solutions for quality-oriented, person-centred, equitable, resilient and sustainable healthcare.

2: MEANINGFUL PATIENT INVOLVEMENT IN CO-CREATING BETTER HEALTH POLICY, PRACTICE, RESEARCH AND EDUCATION

EPF will promote meaningful, systematic and structured patient involvement in policymaking, research and in shaping healthcare practice that empower patients to be active partners in care. EPF will advance patient involvement through campaigns, advocacy, education, research, and projects.

3: DIGITAL TRANSFORMATION THAT DELIVERS FOR PATIENTS

EPF will engage in the digital transformation of healthcare in Europe to support safe, highquality, more participatory and person-centred healthcare that brings better outcomes for patients and value for society. Co-design and patient preferences must be at the heart of digital health solutions, including patients’ access to, ownership and control of their data, safe and ethical use and sharing of health data, and exploring the potential of real-world data for healthcare improvement.

4: ACCESSING THE HEALTHCARE WE NEED WITH NO DISCRIMINATION

EPF will advocate for equitable and affordable access to high-quality, state of the art, inclusive care for all and for the eradication of discrimination and stigma. EPF will advocate for the Strategic Plan 2021-2026 attainment of universal health coverage in Europe, building on the EPF Roadmap and the UN Sustainable Development Goal on health.

5: STRENGTHENING PATIENT COMMUNITIES ACROSS EUROPE

EPF will, together with our members and partners, support European patient communities and health stakeholders with education, resources, and expertise to help them in co-designing people-centred health policies and resilient health systems.

Related Information

EPF Strategic Plan 2021-2026

The overall objective of this Strategic Plan is to define strategic priorities for enabling EPF to grow and work effectively during the five years of the plan.

EPF code of conduct

Key principles required by individuals and how they work for the attainment of the European Patients’ Forum mission and goals.

EPF Constitution

The EPF Constitution, as approved at the Annual General Meeting on 25 April 2020

EPF Declaration

EPF should be seen as a response to recent calls by the European Commission and other EU institutions to have one pan-European patient body to address and be consulted on issues concerning the interests of patients in the European healthcare debate.