STYPA 2019 - Shaping the Future of Patient Advocacy

What is it?

The Summer Training Course for Young Patients Advocates – Leadership Programme is an exciting and unique opportunity offering a tailored high-quality training to young patient advocates or representatives, who have the motivation to learn more about advocacy and maximise their leadership potentials in a real environment. Our vision for the Summer Training Course is to create a platform where young patient advocates would empower, inspire, and learn from each other on an annual basis.

What is the topic?

The previous edition of the Training Course focused on the topic areas of inclusion and non-discrimination as overarching themes, from an advocacy perspective. This year’s topic will be dedicated to investigating how patient advocacy is evolving and facing emerging challenges and opportunities while keeping a strong ethical approach. Young patients’ voices are increasingly heard by regulatory bodies such as EMA, industry, HTA bodies, and policy makers, to ensure that their perspective is not missed to inform the decision-making process. As usual, these opportunities raise questions around the representativeness of those bringing the patient perspective, their potential conflict of interest or risk of bias depending on the role patient advocates play in which context. Through the Training Course, EPF will raise awareness among the new generation of young patient advocates on current challenges, obstacles, opportunities and will share good practises for ethical patient advocacy in complex environments.

Where and when?

The Training Course will be held in Vienna, Austria from Sunday 7th July (evening) through Wednesday 10th July (afternoon) 2019. Participants must be able to attend the entire Training Course programme.

Who should apply?

All applicants must be either a:

  • Young employee or volunteer of a patient organisation,
  • Young patient with a chronic and/or lifelong illness/condition who is affiliated with a patient organisation,
  • Young Patient with a chronic and/or lifelong illness/condition who is not affiliated with a patient organisation,
  • Alternatively, a family member/carer of a young patient with a chronic and/or lifelong illness/condition can attend the training if he/she accompanies a young advocate and is at the same time an active patient advocate.
  • 18 - 30 years of age
  • Country of residence: Applications will be accepted from candidates living in the EU Members States and those countries who have either the official EU candidate or potential candidate country status.

Find the full agenda here.

Read the full advocacy code of conduct drafted by some of the participants.

We will welcome applications from those who participated in the 2018 edition and are motivated to continue their leadership training and development with us!

How to apply?

Please fill in your application via this link.

Applications will be accepted until midnight on 1st March 2019. After 1st March, no applications will be accepted or considered!

All accepted applicants will be notified by 30th March 2019 at the latest. 

Please note: travel and accommodation costs will be covered by EPF.

If you have any additional questions or troubles with your application, please contact EPF Secretariat member Lyudmil Ninov.

Good luck!