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Youth Group Members

Meet the EPF Youth Group!

  • Ivett Jakab

    Ivett Jakab

    Ivett is a liver transplant patient from Hungary, and is President of the EPF Youth Group.

  • Marcus Ward

    Marcus Ward

    Marcus is from Ireland, and has spina bifida and hydrocephalus.

  • Anastasia Semaan

    Anastasia Semaan

    Anastasia has Noonan's Syndrome, and comes from Cyprus. She is the Vice President of the EPF Youth Group.

  • Jana Popova

    Jana Popova

    Jana is from Bulgaria, and has SMA, a rare neuromuscular disorder.

  • Sally Hatton

    Sally Hatton

    Sally is from the UK and has a rare bone condition called XLH.

  • Nikola Kumovic

    Nikola Kumovic

    Nikola is from Serbia and has severe Haemophilia A.

  • Erato Markantoni

    Erato Markantoni

    Erato is a young patient advocate from Cyprus.

  • Erin Davies

    Erin Davies

    Erin is from the UK and has epilepsy.

  • Marleen Kötz

    Marleen Kötz

    Marleen is a German/Spanish young patient advocate.

  • Marou Schenk

    MarLou Schenk

    Marlou is from the Netherlands and is a rare disease patient.