Youth Group Members
Meet the EPF Youth Group!
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Ivett Jakab
Ivett is a liver transplant patient from Hungary, and is President of the EPF Youth Group.
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Marcus Ward
Marcus is from Ireland, and has spina bifida and hydrocephalus.
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Anastasia Semaan
Anastasia has Noonan's Syndrome, and comes from Cyprus. She is the Vice President of the EPF Youth Group.
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Jana Popova
Jana is from Bulgaria, and has SMA, a rare neuromuscular disorder.
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Sally Hatton
Sally is from the UK and has a rare bone condition called XLH.
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Nikola Kumovic
Nikola is from Serbia and has severe Haemophilia A.
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Erato Markantoni
Erato is a young patient advocate from Cyprus.
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Erin Davies
Erin is from the UK and has epilepsy.
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Marleen Kötz
Marleen is a German/Spanish young patient advocate.
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MarLou Schenk
Marlou is from the Netherlands and is a rare disease patient.