Full Members
EPF Full members consist of patient organisations who meet the 5 following criteria:
Legitimacy EPF member organisations should be registered in one of the EU member states. |
Democracy EPF members should have governing bodies, which are elected by their members, who shall be patients, their carers, or their elected representatives. |
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EPF pan-European disease-specific organisations should have members of their own in more than half of the EU member states. National platforms should represent at least 10 different disease groups to be accepted as Full members |
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Accountability & Consultation Statements and opinions should reflect the views and opinions of their memberships, and consultation procedures with those memberships should be put in place. |
Transparency EPF members should disclose their sources of funding and make their audited financial accounts available. |
Representation
Full Members
- Alzheimer Europe (Europe)
- AOECS - Association of European Coeliac Societies (Europe)
- AOPP - Association for the Protection of Patients' Rights (Slovak Republic)
- BAG Selbsthilfe - Federal Association of Self-Help Organisations for people with disabilities and chronic diseases and their relatives (Germany)
- CF Europe - Cystic Fibrosis Europe (Europe)
- COPAC - Coalition of Patients' Organisations with Chronic Diseases (Romania)
- DE - Dystonia Europe (Europe)
- Digestive Cancers Europe (Europe)
- EAMDA - European Alliance of Neuromuscular Disorders Associations (Europe)
- EATG - European Aids Treatment Group (Europe)
- ECHDO – European Congenital Heart Disease Organisation (Europe)
- EFA - European Federation of Allergy and Airways Diseases Patients' Associations (Europe)
- EFAPH - European Federation of Associations of Patients with Haemochromatosis (Europe)
- EFCCA - European Federation of Crohn's and Ulcerative Colitis Associations (Europe)
- EFHPA - European Federation of Homeopathic Patients' Associations (Europe)
- EHC - European Haemophilia Consortium (Europe)
- EHLTF - European Heart and Lung Transplant Federation (Europe)
- EKPF - European Kidney Patients' Federation (Europe)
- ELPA - European Liver Patients’ Association (Europe)
- EMEA – European Myalgic Encephalomyelitis Alliance (Europe)
- EMHA - European Migraine and Headache Alliance (Europe)
- EMSP - European Multiple Sclerosis Platform (Europe)
- ENUSP - European Network of (ex)users and survivors of psychiatry (ENUSP) (Europe)
- EPIK - Estonian Chamber of Disabled People (Estonia)
- EUFAMI - European Federation of Associations of Families of People with Mental Illness (Europe)
- EU-PFF – European Pulmonary Fibrosis Federation (Europe)
- EUROPA UOMO - The European Prostate Cancer Coalition (Europe)
- EUROPA DONNA - European Breast Cancer Coalition (Europe)
- EUROPSO - European Umbrella Organisation for Psoriasis Movements (Europe)
- EURORDIS - European Organisation for Rare Diseases (Europe)
- FE - Fertility Europe (Europe)
- FEP - Spanish Patients' Forum (Spain)
- FESCA- Federation of European Scleroderma Associations (Europe)
- FPP - Federation of Polish Patients (Poland)
- France Assos Santé (France)
- GAMIAN-Europe - Global Alliance of Mental Illness Advocacy Networks (Europe)
- Global Heart Hub - The Alliance of Heart Patient Organisations (Europe)
- Greek Patients Association (Greece)
- HAPO - Hungarian Alliance of Patients' Organisations (Hungary)
- IDF Europe - International Diabetes Federation European Region (Europe)
- IOF - International Osteoporosis Foundation (International*)
- IPOPI - International Patient Organisation for Primary Immunodeficiencies (International*)
- KUZ - Coalition of Association in Healthcare (Croatia)
- KZZ - Confederation of Health Protections (Bulgaria)
- LPOAT - Council of Representatives of Patients’ organisations (Lithuania)
- LPOT - Latvian Network of Patient Organizations (Latvia)
- LUCE - Lung Cancer Europe (Europe)
- LUPUS Europe (Europe)
- MHN - Malta Health Network (Malta)
- NAPO - National Association of Patients' Organizations (Czech Republic)
- NCDP – National Confederation of Disabled People (Greece)
- NPO - National Patients' Organisation (Bulgaria)
- Pancyprian Federation Of Patients Associations and Friends (Cyprus)
- Patiëntenfederatie Nederland - National Coalition of Dutch Patients (The Netherlands)
- Parkinson's Europe (Europe)
- PHA Europe - Pulmonary Hypertension Association Europe (Europe)
- Plataforma de Organizaciones de Patientes (Spain)
- RI - Retina International (Europe)
- SOSTE - Finnish Federation for Social Affairs and Health (Finland)
- SUSTENTO - The Latvian Umbrella Body For Disability Organization (Latvia)
- Sjögren Europe (Europe)
- Swedish Disability Rights Federation (Sweden)
- World Duchenne Organization (International*)
- ZOPS - Patient Organisations Association of Slovenia (Slovenia)
* International organisations that do not have a formally constituted branch in Europe, but are active in the European region, may become Full members.